LENEXA, KANSAS FAMILY HONORS THE MEMORY OF THEIR DAUGHTER ANNA WITH WALK TO BENEFIT MYOTONIC DYSTROPHY FOUNDATION MUSCLES FOR MYOTONIC 5K FAMILY FUN WALK
SAN FRANCISCO, CA (April 7, 2014): The Muscles for Myotonic 5K Family Fun Walk will take place on Saturday, May 31, 2014 at Heritage Park - Shelter #1 in Olathe, KS. Festivities begin with check-in at 9:00 AM, and the walk begins at 10:00 AM.
The annual event began last year with Steven and Kelly Bormann of Lenexa, KS. The walk is held in memory of their baby girl Anna who passed away in 2008 of complications from myotonic dystrophy (DM) at 6 weeks of age. The walk benefits the Myotonic Dystrophy Foundation (MDF), a nonprofit dedicated to advances in Care and a Cure for DM.
The Muscles for Myotonic 5K Family Fun Walk features a short walk, activities, raffles, prizes and more! Last year’s walk had 250 participants.
To read more about the Bormann’s story, or to register and or donate, go to www.myotonic.org/muscles-myotonic.
About Myotonic Dystrophy: Described as the most variable of all diseases found in medicine, myotonic dystrophy is an inherited disorder that can appear at any age and manifests differently in each individual. The most common form of adult-onset muscular dystrophy, DM affects somewhere between 1:3000 and 1:8000 people worldwide, and can cause muscle weakness, atrophy and myotonia, as well as problems in the heart, brain, GI tract, endocrine, skeletal and respiratory systems. There is currently no treatment or cure for DM.
About the Myotonic Dystrophy Foundation: The Myotonic Dystrophy Foundation (MDF) is the world’s largest DM-only patient organization. Its mission is Care and a Cure: to enhance the lives of people living with myotonic dystrophy, and advance research efforts focused on finding treatments and a cure for this disorder through education, advocacy and outreach.
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