Cystic Fibrosis Foundation Kicks Off Great Strides Walks in Kansas City

FOR IMMEDIATE RELEASE: April 29, 2013

Cystic Fibrosis Foundation Kicks Off Great Strides Walks in Kansas City Local Fundraiser Part of Nationwide Effort to Battle Fatal Disease [Kansas City, MO] — The Heart of America chapter of the Cystic Fibrosis Foundation announced today the launch of Great Strides, a national walk event held in hundreds of cities that generates critical funds to fight cystic fibrosis, a fatal genetic disease.

The Kansas City Great Strides walk is scheduled for Saturday, May 11, 2013 at Theis Park, in Kansas City, MO, beginning at 9 a.m. and will coincide with Cystic Fibrosis Awareness Month in May. KCTV 5 Chief Meteorologist, Chris Suchan, will be the Master of Ceremonies.

“We still lose precious young lives to this disease every day. It’s more important than ever that we rally our community to fight CF,” said Peggy Henley, volunteer chair for the CF Foundation’s Heart of America chapter. “We are grateful for every volunteer, donor and corporate sponsor who supports Great Strides.”

Funds raised through Great Strides have helped spur dramatic progress in the lives of those who have cystic fibrosis. Fifty years ago, most children with CF did not live long enough to attend elementary school. Today, people with CF are living into their 30s, 40s and beyond.

The 2013 goal of Great Strides is to raise nearly $42 million nationwide for CF research, education and care. Locally, Great Strides will raise over $390,000. Money raised goes to vital research and development, as well as, local care centers.

Local sponsors and corporate partners of Great Strides include Novartis, Walgreens, Vertex, Hill-Rom, Abbvie, Respirtech, Children’s Mercy Hospitals and Clinics, KU Medical Center, IST, Lockton Companies, Chubb Group, Partners Specialty Group, LLC, Arvest Bank, Travelers, CNA, the Greater Kansas City Association of Independent Insurance Agents, HyVee, Price Chopper, Planet Sub, Sonic, The Roasterie, Judi’s Bakery, Glacier Ice, Treat America, and Liberty Fruit Co.

Cystic fibrosis affects about 30,000 adults and children in the United States and 70,000 people worldwide. It causes debilitating lung infections that lead to premature death. More than 10 million Americans are symptomless carriers of a defective CF gene.

The CF Foundation is an accredited charity of the Better Business Bureau’s Wise Giving Alliance.

To help fight CF, get involved in Great Strides by calling the Heart of America Chapter at (913) 384-8997 or by visiting http://greatstrides.cff.org. About the Cystic Fibrosis Foundation The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. The Foundation funds more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support. Based in Bethesda, Md., the Foundation also supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. For more information, go to www.cff.org.

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